Trying to conquer Eczema, Food Allergies, & Asthma. Countless hours, dollars, blood, sweat, and tears have gone into this mission and our story is being shared in hopes that others can gain some knowledge in their fight against these miserable autoimmune diseases. Please note, I'm a mom and not a doctor.
Monday, January 16, 2012
Hershey Kisses Revisited
One thing I've encountered more times than I can count is how everyone likes to give kids candy. They do it as a nice gesture, to be the good guy, and to appease kids. Nothing wrong with that, I suppose, as I know I've done it myself. But nine times out of ten they offer candy without asking the parent's permission, and through the years I have consistently been put on the spot to be the bad guy whether it's at the grocery store, the hair salon, the pharmacy (recall when the pharmicist offered my kid peanuts of all things!), etc. Around the holidays, it's even more prevalent. This past Christmas a friend made gift bags with Hershey kisses in them. In October 2009 I had made the mistake of giving my son a Hershey kiss, as I wrote about it here. Two years have passed and about 135 NAET treatments later, and after a lot of begging from my kid, I thought we'd try it again. Afterall, the ingredients are pretty minor in comparison to most candy--containing sweet or semi-sweet chocolate, cocoa butter, sugar, milk, vanillin, milk, nonfat milk and soya lecithin, (and I'm sure there's potential for cross contaimination with their other lines of kisses.) After eating one he said his lip was itching and had a small hive on his face, even though he's treated for each ingredient individually. I home treated him for the kiss, had the doctor test him which she said he passed, and he tried another one. This time without any issue what so ever. Sometimes the combination treatment is necessary for reasons beyond me. I'm just glad he's able to enjoy the little things in life again.
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Hi! I have been following your blog for a while now.
ReplyDeleteI have been meaning to ask you about the MSM supplement, it seems like everyone who has seen improvements in their children that I've read had supplemented with MSM. I asked my DR but she said it's not needed. But I clearly see from people who reached results had MSM in the treatment combination.
Can you tell me how he was supplemented with it, what brand? and the dose he started with? Is he still taking it?
Thank you!
Kristina
Also what did you think about NeuroProtek? I remember you were trying that too...
ReplyDeleteThanks :)
Our Ped had recommended MSM and NeuroProtek. I think his rational is that you have to try to find if it's what this particular case needs. Originally we used a Kirkman brand of MSM, then I purchased a brand called 'Source Naturals'. He took 1/4 teaspoon of powder. MSM is suppose to help allergies and connective tissue. I couldn't tell if it was helping, so we cut it out a few months ago.
ReplyDeleteThe NeuroProtek is very interesting to me as it has some great stuff in it that crosses the blood/brain barrier. From the reading material that it came with it states it can take 6 months to be effective. He took it for about 3 months, but at $40/bottle I couldn't tell if it was working. Not to say you wouldn't have a different experience.
Have you tried D-Hist Jr? We did for awhile. The doc had a kid whose eczema cleared up with the addition of this, just happened to be what that child's body needed. We didn't get that result, but was worth a try.
I'll look into it the D-Hist! Thanks :-)
ReplyDeleteHow long had he been taking MSM, for how many months? daily?
I'd love to hear which other supplements he has been taking on a long term basis.
I'm very glad to hear about your boy's progress!!!! !!!! it's exciting to hear about him enjoying foods!!!
Kristina
He took the MSM long enough to go through a big tub of it at 1/4 tsp/day. I'd guess 6 months. He's 3 staples are probiotics (we started with Klaire Labs 100 billion CFUs, and switched about a year ago to Dr. Mercola's complete probiotics as they're easier to get), fish oil (we started with Nordic EFAs and have switched to Krill Oil as it's more potent and shelf stable), and vitamin D which he has taken 2000 IUs each day for the last 2+ years. His blood levels have been checked and he's in the upper range of optimal. He also takes Juice Plus+ vitamin chews but I might switch him back to a multi (he use to take Animal Parade by Nature Plus) due to price.
ReplyDeleteWe have done other various supplements throughout this ordeal and weaned them out as he's improved. When he was two years old we were seeing an ND who had him on something new almost every week. It was maddening and expensive. I think I counted 80+ supplements in my cabinet. Once we found a ped who had dealt with chronic inflammation he got us down to our main 3 and then we'd add something new here and there. He's the one that suggested the D-hist jr, MSM and neuroprotek. He also prescribed LDN, which I have some links along the right on. We stopped that back in June or so.
This is super informative! Thank you!!! !!!
DeleteKristina
Wow I just finished reading about LDN from your links. It sounds like the best kept secret. I am going to ask our Dr about that one Can you tell me what was the dose for your son?
DeleteKristina
Everything I've read on it has been amazing. LDN was having success with MS, and Dr. McCandless who was working with autistic patients at the time noticed that the blood panels on autistic was mirroring that of MS, so she tried LDN for them and had success. It causes a homeopathic response in the body by causing the body to balance out a skewed immune system. LDN is considered off label (so are many other drugs), meaning that it isn't being use for what it was originally approved for by the FDA, although it is an FDA approved medication. Many doctors are leery and may not want to prescribe it due to that and because they're not familiar with it so you'll have to do your homework if you want to pursue this route. We used the transdermal (cream) in a syringe like dispenser. It's written as 'naltrexone (3ml) 6MG/GM cream.' You have to get it from a "compounding pharmacy", which is a pharmacy that makes their prescriptions and not merely just supplies stuff off the shelf. Start off slowly, dispensing 1 line per night for a few nights as it can cause sleep disruption (although my son never experienced that.)Then progress up to 3 to 5 lines. Body weight is a factor,too, but it seems like most kids do well on 3mg (5 lines), with adults topping out at 4.5MG (which I think would equal 7 lines, but don't quote me!!) There's also a pill form available. There are also some great Yahoo! groups on this subject.
ReplyDeleteNow the million dollar question is, "Did it work for us?" We used it for a good 12-18 months. I think it did have an impact, but we were also doing NAET which I could witness changes after a treatment. Once again, we viewed it as one of the things we had to try, it had its place, and then we moved on after he stabilized and was improving without it.
Thank you so much for the detail. I will see what my Dr says, and if she isn't familiar with it, I will search for one who is.
DeleteThe before and after pictures of the colon in one of your links really looks promising in treating the "leaky gut"...
What is the name of the Dr that treats your son and prescribed the LDN?
Thank you!!!!!
Kristina
There is a Yahoo Group called 'LDN Users' and the moderator keeps a list of doctors that prescribe it by state. Her name is Crystal and you can email her at angelindisguiseldn@yahoo.com. I've actually found a few more MDs in my area that are familiar with it that are not on the list by searching for holistic docs. We were seeing Dr. Linsk before he left for a fellowship. Yeah, the pics of LDN and Chrons' are remarkable, those studies are being done at Penn State if I recall correctly.
ReplyDelete