We had our 3rd NAET appointment today. Good news is that he cleared from the egg treatment and we have the go ahead to feed him eggs. We'll try that at some point,I'm just not ready. With each treatment his body should desensitize, and that will make me feel more confident. We proceeded with the Calcium treatment today, so we now need to avoid a multitude of foods with calcium for 25 hours which shouldn't be hard since he's already avoiding most, if not all, foods on the list due to his food allergies. We'll be out of town for a couple of weeks, so we'll have to take a break from NAET, but I'm eager to get back and proceed with the program. If we can get any relief from this it would be worth it.
Our doctor was trained by the founder of NAET, Dr. Devi. It's interesting to listen to him tell his story of stumbling upon NAET. Basically he needed to find something to help the autistic and allergic kids in his practice. He did an internet search and NAET was all over the place. He was skeptical, even thought it was "hocus pocus", but says the relief it's brought to the families is proof something is working with NAET. He's currently treating 63 children with NAET, and 60 of them have responded favorably. The other 3 didn't see any difference, but he said they were very high functioning kids on the autism spectrum that didn't have much room for improvement to start with.
We also saw the Ped today, and we have stopped the anti-fungal treatment for now. The doc was very pleased at how clear my son's skin is right now. He thinks the Liver Life and MSM will continue to help remove any toxins in his system, and doesn't want to add anything further to his daily regiment.
Wednesday, December 23, 2009
Monday, December 21, 2009
2nd NAET Treatment
My son had his second NAET treatment on Friday. This one was treating him for egg and certain protein sensitivities. Basically he put the vial of diluted proteins in his sock so it's in contact with the skin. The the D.O. took a massaging tool to my son's back to stimulate the nervous system. Then we wait for 20 minutes before acupressure is applied to 10 sites and the vial can be removed. We are to steer clear of a variety of items and foods associated with eggs for 25 hours, while periodically rubbing the acupressure sites. The craziest part (if that doesn't sound crazy enough!) is that the D.O. said that after our next appointment we can feed our son egg. The thought terrifies me, as this is a kid that hasn't had egg in any product for at least 18 months. He's IgE positive (level 3) to both whites and yolks, and has had 3 anaphylaxis reactions in his life (not to egg, but to blueberries, peanut, and sunbutter.) But even knowing all this, the doctor was confident that the treatment would successfully desensitize our son. I think I'll wait until after the holidays just to be safe. Our 3rd visit is this Wednesday. Maybe it's just coincidence, but since this treatment my son's constant eczema and hives on his stomach have vanished. I haven't done anything different, but they are gone.
Thursday, December 10, 2009
Another Allergist/Asthma Doc
I've been contemplating finding another asthma doc for some time now, as I just feel more comfortable having one in my back pocket if ever needed. The last one didn't buy into the fact that my kid has food allergies that flare his eczema, which is totally insane and infuriating. I also got the sense that he didn't believe that I was doing everything in my power to help my child, which is even more absurd. Anyways, I bit the bullet and took my son to yet another doctor to seek a second opinion on his RAST test and to get a game plan for the epi pen.
I really liked this new doc, he was a bit wacky in a good way and related well with my son. He said he's had dermatologists that didn't believe food could cause eczema, to the point that he has invited them in for food challenges to convince them. No wonder there are so many moms out there feeling like they're "the crazy mom", as that's how they see us. This doc however didn't buy into the yeast theory and outlined a simplified plan that he wants us to follow that eliminates the yeast treatment completely. I'll take that with a grain of salt because I've seen progress. He did agree that we should continue with the probioitcs, multivitamin, D3, and fish oil. Interestingly, he said the Pulmicort .25 has now been found to only have a placebo effect and prescribed .5. However, my son does very well on .25 and I'm not feeling inclined to increase his dosage at this time. The new doc also prescribed Atopiclair Cream which seems to reduce the redness and dryness in the two days that we've used it, and he recommended Elidel which I've been hesitant in the past to use but will try it for a few days to give the Desonide steroid cream a break. As for the black-box cancer warning with the Elidel, he clearly said it was overrated and felt comfortable prescribing it. As for a steroid cream, he recommends Fluticasone as it's the only one that has been tested and approved by the FDA for children.
The new doc explained that we could do food challenges in the office to "clear foods." This means that if my son didn't have a reaction, then we can add it back to his diet to increase the variety of food and nutrition. However I'm leary of this technique due to the fact that I know my son can have one glass of milk and appear fine, it's after 2 or 3 glasses that his skin turns into gritty sand-paper and the eczema flares. So knowing this, why would I allow my son to ingest certain foods? How do we know that an internal reaction/irritation is not being caused before we see it externally? With all that we have going on, I want to take it slow and am not ready for food challenges. Tomorrow starts our first Naet treatment, which I'd like to see through before pursuing another course of action.
I really liked this new doc, he was a bit wacky in a good way and related well with my son. He said he's had dermatologists that didn't believe food could cause eczema, to the point that he has invited them in for food challenges to convince them. No wonder there are so many moms out there feeling like they're "the crazy mom", as that's how they see us. This doc however didn't buy into the yeast theory and outlined a simplified plan that he wants us to follow that eliminates the yeast treatment completely. I'll take that with a grain of salt because I've seen progress. He did agree that we should continue with the probioitcs, multivitamin, D3, and fish oil. Interestingly, he said the Pulmicort .25 has now been found to only have a placebo effect and prescribed .5. However, my son does very well on .25 and I'm not feeling inclined to increase his dosage at this time. The new doc also prescribed Atopiclair Cream which seems to reduce the redness and dryness in the two days that we've used it, and he recommended Elidel which I've been hesitant in the past to use but will try it for a few days to give the Desonide steroid cream a break. As for the black-box cancer warning with the Elidel, he clearly said it was overrated and felt comfortable prescribing it. As for a steroid cream, he recommends Fluticasone as it's the only one that has been tested and approved by the FDA for children.
The new doc explained that we could do food challenges in the office to "clear foods." This means that if my son didn't have a reaction, then we can add it back to his diet to increase the variety of food and nutrition. However I'm leary of this technique due to the fact that I know my son can have one glass of milk and appear fine, it's after 2 or 3 glasses that his skin turns into gritty sand-paper and the eczema flares. So knowing this, why would I allow my son to ingest certain foods? How do we know that an internal reaction/irritation is not being caused before we see it externally? With all that we have going on, I want to take it slow and am not ready for food challenges. Tomorrow starts our first Naet treatment, which I'd like to see through before pursuing another course of action.
Saturday, December 5, 2009
NAET
We're still trying to clear my son's skin after the eczema flare from the caulking 2 weeks ago. This past week he came down with a cold with I'm sure has prolonged his flare-up. He's starting to look better, it's just taking a real long time.
We're continuing the Ketoconzole treatment for another month, and we've added MSM powder and some herbal liver support called Liver Life. Since we're continuing to experience eczema and food sensitivities, our MD has also recommended that we start a NAET program through the DO in his office. We had an impromptu consultation with the DO and we had the opportunity to sit in on a session of another 3 year-old, although his issues were with autism. I'm in the process of researching NAET, Nambudripad’s Allergy Elimination Techniques. This is a non-invasive, drug-free, natural solution to eliminate allergies of all types and intensities using a blend of selective energy balancing, testing and treatment procedures from acupuncture/acupressure, allopathy, chiropractic, nutritional, and kinesiological disciplines of medicine. One allergen is treated at a time, and it's my understanding that there are 15 standard allergens tested in a specific order initially. The mother of the autistic child said she has seen dramatic results in just a few weeks with NAET, to the point she tried it herself for a milk intolerance that has now been 'cured.' I had no idea that the child was even on the spectrum, he seemed as interactive and developed as my own 3 year-old. I also have an acquaintance that once mentioned NAET to me as her son had good results, too. I remain hopeful that we are going to fix this child, or he's going to out grow what ails him. I'll keep you posted as to the NAET that we start on Monday. I hope to be singing its praises from the roof tops, but at the same time I realize this is just another avenue that we need to try.
We're continuing the Ketoconzole treatment for another month, and we've added MSM powder and some herbal liver support called Liver Life. Since we're continuing to experience eczema and food sensitivities, our MD has also recommended that we start a NAET program through the DO in his office. We had an impromptu consultation with the DO and we had the opportunity to sit in on a session of another 3 year-old, although his issues were with autism. I'm in the process of researching NAET, Nambudripad’s Allergy Elimination Techniques. This is a non-invasive, drug-free, natural solution to eliminate allergies of all types and intensities using a blend of selective energy balancing, testing and treatment procedures from acupuncture/acupressure, allopathy, chiropractic, nutritional, and kinesiological disciplines of medicine. One allergen is treated at a time, and it's my understanding that there are 15 standard allergens tested in a specific order initially. The mother of the autistic child said she has seen dramatic results in just a few weeks with NAET, to the point she tried it herself for a milk intolerance that has now been 'cured.' I had no idea that the child was even on the spectrum, he seemed as interactive and developed as my own 3 year-old. I also have an acquaintance that once mentioned NAET to me as her son had good results, too. I remain hopeful that we are going to fix this child, or he's going to out grow what ails him. I'll keep you posted as to the NAET that we start on Monday. I hope to be singing its praises from the roof tops, but at the same time I realize this is just another avenue that we need to try.
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